There are currently two forms of this illness, primary and secondary. In the case of Jameison, he was the first reported case of primary HLH not being inherited from either parent, in the WORLD. Reinforcing the need for funding, in order to further understand what this truly is, and know exactly how it is acquired.
This criminally underfunded illness is a chromosomal disorder that is incredibly rare, but is rapidly growing in exposure. The interesting thing about this is, just like his HLH case, JAC was the first to be diagnosed with a specific abnormality to the seventh chromosome. This is why we need to provide funds to further the research into this rare issue.
There is only one way that a cure will be found. Funding a lot of money to those that are putting in the work to find a cure for HLH and finding ways to fix the various Monosomy chromosome disorders as well.
We want to branch out to financially support families with loved ones the are fighting HLH.